Sunday, March 1, 2015

We have a scheduled birthday

      This week we had another ultrasound and it was also my last week at work so therefore Lucas's last week at daycare. I know I am going to miss everyone at work and leaving there was not an easy choice as I truly had a job that I love. I know life is about to take us for a ride and that I need to be truly committed and present for my family so Robbie and I decided me not working is what is best for us right now. The wonderful people, who have become my friends, that I had the pleasure of working with made my last day unforgettable. I was showered with gifts and well wishes and felt so loved :) We also felt so much love from Lucas's daycare; his teachers got Lucas and Riley gifts and put together a basket with things we will definitely be needing while spending time at the hospital. We could not be more thankful for how they have cared for and loved Lucas this last year and a half. Thank you from the bottom of our hearts to everyone at Friendship!


            We learned at our ultrasound on Tuesday that baby Riley has either a very restricted atrial septum or an intact atrial septum. The pediatric cardiologist said that out of every 10-12 babies at Riley every year with HLHS that only 1 every 1-2 years has this. She will need to be taken to the hearth cath lab within seconds of her being born and it will be very time sensitive. They will create an opening in her heart since hers is not there so that blood can pass through. She will be delivered by c-section at Riley Hospital on March 16th. They do not deliver babies at Riley very often but it has been done before. I will have to have a c-section as they don't have the capability for me to labor there.  We have had a rough week after learning all of this and if we didn't admit that we are having trouble staying as positive we would be lying.  We are feeling better and getting into a more positive place as the week has passed and concentrating on all of the details and getting everything ready for her arrival.  I find comfort in keeping myself busy concentrating on things that I can control such as who is going to watch Lucas when, making sure everyone has everything that they need, and keeping the house clean.

      The Team Riley Marie shirts were a huge success, Thank you Michelle! Thank you to everyone that purchased one and we can't wait for the walk in May and to get a group picture of everyone in their yellow supporting our girl!  We are very anxious as she will be here in just 2 weeks but I am also looking forward to spending lots of time with Lucas these next 2 weeks :) Thank you again everyone for your support, generosity, and love!
     

1 comment:

  1. Katie & Robbie, thank you so much for this blog and for sharing your experiences through it! I have not got a great understanding of what you are going through and reading your blog helps a great deal. I pray for your family on a daily basis, and will add some additional prayers as Riley's date of birth is coming soon! Katie, you have done an amazing job of detailing everything, I know this has to be difficult, but I am certain you are going to be helping another family that is facing the same diagnosis in the future! We love you all and pray for safe delivery, successful surgeries and a beautiful little girl come March 16th! Please do not hesitate to contact us if there is anything we can do to help!

    Susie, Butch, Tommy Fulford
    Lisa, JC, Cali, Hannah & Addison Cleveland

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