Monday, December 15, 2014

We SO feel the LOVE!

I wanted to share a little bit of the love and support we've received since finding out about Riley's heart. I found a website of a group called Sisters by Heart. It is a group of women who are all mothers of children with HLHS (hypo plastic left heart syndrome). There is a wealth of information and support on this site including stories of children who are doing well, studies from doctors, and the not so easy to read stories of children who earned their angel wings. We received the most amazing care package in the mail from this group of women! There are handmade items made in memory of children including a sweet little hat, hospital gown, and hospital mask along with other things. Every single item had a sweet message on it of the reasoning for the item. It even had a book just for Lucas :) There is a song written by a Christian singer named Matt Hammitt called "All of Me." His son was born with HLHS and is doing well and he wrote the song for his son. I received the CD of this song in the care package and have enjoyed listening to it even though it is a very emotional song for me. You can listen to it on youtube. I took a few photos to share. 




We also received the sweetest card in the mail from my cousins Joni and Steve in Florida. She sent out a prayer request and cut out all of the responses that people sent to her along with a great note from them. It is amazing to me that all of these people that we have never even met are praying for us! God is so good and amazing!! Thank you Joni and Steve, getting that card in the mail means so much to us! sorry the picture is sideways, we tried to fix it!


Everyone's well wishes and sweet messages on facebook means so much to us! We are truly surrounded by amazing and loving people! Riley's room is now painted and she has beautiful furniture thanks to my amazing dad! We go to St Vincent's next Tuesday for a full day of Dr. Appointments so I will update on how Riley is doing!

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